Showing posts with label Germany. Show all posts
Showing posts with label Germany. Show all posts

Sunday, February 05, 2012

Swedish Lyme patients have to go to Norway for treatment

Picture from the Swedish radio page linked below
Pioneers Abroad Save Borrelia* Patients.
(Swedish Radio program - translated from this link. Also see the original post on this blog.)

Thousands of people suffer badly without receiving any help from Swedish health care.

After years of fruitless attempts to get treatment they turn abroad and get cured. But the patients have to pay the expensive treatments themselves since it's not recognized and approved by the Board of Health. They discard the treatment as dangerous and unscientific. Every year around 10 000 Swedes get Borrelia after being bitten by ticks. Almost all seek help and are cured by a brief round of antibiotics, if given immediately. But there are also several who do not seek help immediately, so the infection gets a grip on their bodies. A while later they get chronic Borrelia, an illness which, according to the Board of Health, doesn't exist. But in Norway & Germany patients are given antibiotics for up to a year, and get cured.

2008 was a tough year for Andrew, 45-year-old craftsman. His father passed away, he had stress at work, young children at home and his summer was ruined by a virus infection. During the autumn pain began in his arms and legs, and he sought treatment.

Antibiotics should never be longer than 30 days. That is the predominant route of many countries' health authorities. In Germany and at the Arena Clinic Borrelia Center in Oslo the patients are given aggressive antibiotics for a total of one or up to two years. Deadly, claims Welfare. - Not so, says Margaret Gabrielsson, who has just been declared healthy after two years of treatment.

Margaret and Andrew's stories are similar to that of many others. They are met by skepticism and neglect here in Sweden and so they go to the clinic in Oslo where they are met by listening, understanding health care professionals who take their concerns seriously. A whole new world opens for those Swedish patients.

Arena Clinic Borrelia Center in Oslo has helped thousands of people diagnosed with chronic Lyme disease to become healthy. But the costs mount up. Treatment is expensive. Blood sample analysis, dotors' visits, alternative treatments and not least, the aggressive antibiotic regimens were given either intravenously or in tablet form. A typical treatment takes about a total of two years and then the patient has been out of pocket somewhere between one hundred thousand and two hundred
thousand dollars.

In Norway the health authority pleased is pleased by dr. Rolf Luneng's work, but his clinic would never be here in Sweden. Anders Tegnell is Head of knowledge management at the National Board. It is he who gives out guidelines and guidance.

I wonder why Luneng's clinic is not allowed to be here in Sweden.

(*Borrelia: Lyme disease, or Lyme borreliosis, is an emerging infectious disease caused by at least three species of bacteria belonging to the genus Borrelia.)

Monday, January 30, 2012

Scandinavian Lymies have the same battle!

Why on earth can developed countries not treat and care for their own Lyme Disease Patients until they are well and functioning again? Nobody can understand that.

Friend Nyree from Sweden sent a message this morning, about Scandinavian patients having to go to Norway for treatment, with support from Germany! I'm posting her message with her permission here below:


Nyree wrote: Yesterday I was listening to the radio, and an “investigating” radio show, broadcasting on national level had a program labeled Pioneers abroad save Borrelia patients.

Needless to say I began listening more thoroughly & also downloaded the show to listen from the start today.
The program spoke about how difficult it is for Lyme patients to be believed, and to receive the proper treatment since antib’s are only distributed during 30 days here in Sweden, and many are mistakenly diagnosed with MS while they truly suffer from Neurological Borreliosis…They mentioned both ILADS & IDSA in the program.
A Norwegian clinic, Arena Kliniken, http://arenaklinikken.no/ are treating lyme patients based on American findings via a clinic in Augsburg, Germany, and they receive many patients from Scandinavia…
(Translation of the article can be read here on this blog.)

The German Lyme Fighter, Armin Schwarzbach
  Thanks for sharing, Nyree! And I'm pretty sure the Augsburg clinic might be by one of the doctors I met and chatted with in October at the ILADS Conference in Toronto - see his picture on the right.

A petition is online to lobby for removal of the outdated IDSA guidelines. The site explains the reasons. Please read for yourself, and sign, then share the link with others. Countries outside of the USA, skip the box for "State" and just choose your country. It will work that way.

* On another level, the website for the Lyme Walk in Brampton has been registered on the weekend and is being developed. For some reason the site is not live (yet) while I'm writing, so a mirror site is there. The petition is linked on the right side of that site. Please share! We hope to have a sea of green T-shirts there that day! Wear green if you have it, but we are designing and ordering shirts as well.

LymeWalkBrampton website or if that's offline, the mirror site LymeWalkBrampton
 Jenni is working on a better graphic of the jailed tick and more pages, info and links will be added as the weeks go by.

Other stories to read:

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