Tick Tales
During the last two weeks, I've had several people emailing or talking at various meetings about finding ticks on themselves, their children or their pets. The last three events were in the Kawartha Lakes area (found a tick in a child's ear), in the Font Hill area (ticks on teenagers) and in the St. Catharines area (ticks on an adult, twice in one week). Many were grateful for having had brochures or cards from various talks about Lyme Disease and able to take care of the problem. One woman was just walking in a Home Depot when she found a tick in her hair! Remember that ticks can be very small.

Picture from Public Health Agency of Canada

The picture above is from the PHAC website, where there is also an updated list and maps of known endemic areas. No longer is only Turkey Point mentioned in Ontario, for instance. Do stop by and take a look at THIS link and protect yourself and your family.

I'm really excited about the news following below, and which has now been made public!

NEW Foundation for Vector-Borne Diseases

A new Foundation for Vector-Borne Diseases (carried by ticks, mosquitoes, etc.) to support research, accurate testing and proper treatment of Lyme Disease has been founded in Canada. The foundation is partnering with the new Humber River Hospital in Toronto, opening in 2015, to develop a world-class facility in the country.

Rossana Magnotta, who worked hard to establish the G. Magnotta Foundation for Vector-Borne Diseases, says: "It'll be the Mayo of Canada, when it comes to Lyme disease research. We're not out to panic people, just to spread awareness and get accurate testing - that's the biggest hurdle."

Gabe Magnotta lost his battle against this devastating disease in 2009. It took years for him to get diagnosed and even when treatment started, it was too late for his body to overcome the ravages inside. Since then, Rossana has worked tirelessly alongside CanLyme to bring more awareness about the often misdiagnosed disease. The foundation is named in his memory.

CanLyme urges public to be “tick aware” this season

Tick season has begun in many parts of Canada. Ticks are on the move above -2 degrees C / 28.4 F.

Lyme disease is the fastest growing infectious disease in North America. The United States reports over 30,000 cases annually, and estimates the disease can be underreported several fold. Disease carrying ticks are becoming more and more prevalent in Canada and are on the move.

Ticks are found Canada wide. The species of ticks that transmit Lyme disease to humans are only about the size of a poppy seed when they are in the nymphal stage, and only about 3 mm in length in the adult phase. Different species of ticks are capable of transmitting several different diseases to humans including Lyme disease. These ticks are transported randomly throughout Canada by our friendly migratory birds that can also harbour Lyme disease and other diseases in their blood. Remember, no tick is a good tick.

Lyme disease can cause long‐term health issues if not identified and treated early. It can affect the brain, eyesight, hearing, heart, nervous system, muscles, joints, digestive tract, and lymph nodes. Because Lyme disease is a multi‐system disorder many systems of the body can be affected at once, therefore, it can often be misdiagnosed.

Lyme disease is being missed in Canada as doctors are not told of the limitations of blood tests used here, and are not educated as to the complex symptoms that result if not caught and treated early. Lyme disease has been misdiagnosed as multiple sclerosis, Parkinson’s disease, ALS (Lou Gehrig’s disease), several forms of arthritis, chronic fatigue syndrome, fibromyalgia, bowel disorders, and many other diagnoses.

WHERE ARE THE TICKS?
Ticks can be found anywhere that birds fly: in your lawn, on your pets, in tall grass or brush, on logs or
woodpiles.
If outside do not brush up against brush or tall grass, walk in the centre area of trails, and wear a repellent containing DEET.
Pets can carry ticks into your home. Talk to your veterinarian about protecting your pets.

HOW TO REMOVE A TICK
Use fine tipped tweezers to remove an attached tick, being careful not to touch the body of the tick (get as close to the skin as possible then pull backwards). Apply antiseptic to the area immediately. Save the tick if possible and call us, or your local health department. Waiting for blood tests is the wrong way to deal with possible Lyme disease as detectable antibodies do not develop for several weeks, when the disease has disseminated into deep tissue making treatment much more difficult.

Prevention is the best medicine. Be tick aware, NO TICK IS A GOOD TICK!
For more information on prevention please visit www.canlyme.com/prevention.html

Lyme disease is a serious threat Lyme disease is on the rise in Canada, yet treatment and public awareness are largely inadequate. Canadian Lyme Disease Foundation (CanLyme) is dedicated to raising awareness and promoting Lyme research, education and treatment.

**Information from Press release by CanLyme, and from personal discussions with Rossana Magnotta.
** Article in the Toronto Sun

Lyme Mobile brings something wonderful

This is meant to be, Kim and I are sure of it! This Lyme Mobile has already saved lives. Happened again this morning. But first to tell about last night!

We took the Lyme Mobile over to Vaughan for the Magnotta Underground Cellar event, to benefit CanLyme and awareness of Lyme Disease. Neither of us met Rosanna Magnotta before, although of course we know of her, and their winery is one of our (family) favourite spots in the Niagara Region.

Trying to change lanes to get to the winery last night was interesting! People kept reading the messages and signs on the car instead of letting us in! But we made it and Rosanna was waiting for us. The Lyme Mobile was parked so that arriving guests would see it and know they were at the right place.

Rosanna Magnotta, Kim and Marlene with the Lyme Mobile

(bigger picture)

Inside, we met with several interesting and interested people, struck up conversations, enjoyed the delicious snacks and of course Kim shopped a little! We were surrounded by barrels of aging wine, and people who actually asked the right questions about Lyme instead of looking surprised. Sharing stories, some of them horror tales of sadness and lives forever changed. There has to be accountability; this can not continue.

 

Picture above is a combination of one of the pretty decorated tables scattered around, and a view from a corner of the cellar where the function was held. (bigger picture)

A meeting meant to be

This morning, I took the Lyme Mobile to work since it has to be at the Brampton Community Expo tomorrow, with flyers, CanLyme brochures, and Pam and I in attendance to promote the Lyme Awareness walk on May 19. I took a different route than usual, stopped at several places where I don't usually go in the morning, and then decided to visit a business supporting our Lyme Walk. I didn't know where they were, so pulled into an office building's driveway to make a phone call. 

I wasn't there 10 seconds when a man came out of the building. He did a double take when he saw the Lyme Mobile, walked to the side and asked me to roll down the window. He said, "This is the Lyme Disease I know about, right? From a tick?" I said yes and he said, "I have a friend in the hospital in Downtown Toronto. She is dying from Lyme Disease. The doctors don't know what to do. I don't know what to do."

I grabbed flyers about the Brampton Walk and brochure of CanLyme, told him I have Lyme Disease myself and was dropped from treatment in Ontario. He got very upset, saying what are people supposed to do? I said that is exactly why we are driving the Lyme Mobile, arranging events like the Lyme Walk, handing out information and trying to bring awareness. Wrote down some info, told him to try and call my doctor, give my name and see if he can get help for his friend. He was so grateful, I was in chills and almost in tears .... 

The kind, kind man shook my hand, and said, "What are the chances of me meeting you here now, today, in this moment?"

This is planned, this is meant to be, we are being directed into a place and being exactly where we are to be. No other answer. For me, I believe that God is directing this. Other people can believe in another power. But this is not from one person or even a group of people.  There is a force at work, and this year will bring great things and great changes.

The Lyme Mobile and the Hydro worker

On Monday, when Kim had the Lyme Mobile, she stopped at a Tim Hortons. There was a group of Hydro workers and they asked about the disease. She started talking, one guy pulled up his shirt --- and he had a bull's eye rash. Kim immediately handed him brochures and told him to get himself to a doctor as soon as possible, to insist on at least 2 weeks of antibiotics and to find another doctor if that one wouldn't give it to him. Unfortunately only a very small percentage of infected people show a rash like that, but the specific rash is complete proof of Lyme Disease. Immediate treatment is needed. DO NOT wait for symptoms. 

That is what we're trying to accomplish: Information, education, knowledge, patients to be on the lookout without being paranoid, and doctors to treat immediately.