Thursday, October 04, 2012

Please help Lymies by voting!

Aviva Insurance has a contest and is donating money to non-profit causes.  The Canadian Lyme Group has registered the new Vancouver Chronic Disease Clinic  (was called the BC Lyme Research Clinic) as a good cause and they want our help!   If we generate a lot of votes for this clinic, it is going to mean as much as $150,000 for the clinic!  
1.  Go to  It tells you on that page that you need to register but that is easy to do.  They only want your email address, and you make up a screen name and password. You can also register with your Facebook. 
You earn 15 votes by registering (but can only use one vote per day).   Make a note to vote each day until October 15th.  Then, we see if go to a second round of voting. 

More info on Facebook:
Right now we are at a lowly 693 votes, please vote and ask everyone you know to register and vote daily.  Thanks.

Well over 1 million Canadians suffer from chronic illnesses such as myalgic encephalomyelitis (also known as chronic fatigue syndrome), fibromyalgia, multiple chemical sensitivities and Lyme disease and do not get adequate care and treatments by our health care system. 

A new Complex Chronic Diseases Clinic will open in 2013 in Vancouver to address these diseases and provide the support that its sufferers deserve. 

Through this project, we want to help fund  medical equipment needed in order to properly diagnose these patients, get the care they need and train staff in performing these tests according to the standards of the field.

The first testing equipment needed is a tilt table, with cardio-vascular monitoring- and blood pressure machine. This helps physicians understanding the extent of autonomic nervous system dysfunction called Neurally Mediated Hypotension (NMH) or Postural Orthostatic Tachycardia Syndrome (POTS). 

Secondly, a new protocol called "Stevens' protocol" consist of a 2 consecutive days VO2 Max exercise test, tests cardio-vascular endurance and tests for the a pathology unique of patients with myalgic encephalomyelitis. A special exercise bike is needed, along with cardio vascular monitors, including an oxygen and carbon monoxide sensor is needed. 

Holter monitors would be great for patients to get their hearts monitors for 24 hour testing. 

Proper training will be needed for professionals to use these monitors properly. 

These 2 tests provide objective proof of illness which has been lacking in the past. Moreover patients will also need Holter monitors. 

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