So many things have happened since we came back after seeing Dr. McS! I'll try to update or recap. But keep reading -- there's big stirrings going on!
|Essie holding on to my hand|
Several people asked what the previous post meant, with all the names of the medications and such. "Are you still sick?" was the most popular question. I guess so, even though I don't want to admit it, haha!
In short, I'm still being treated for Lyme and the co-infections of Babesia and Bartonella, plus a protozoa infection. Some of the medications we can't get in Canada, so had to fill the prescription while in the States. Some capsules would have to be made at a compounding pharmacy - and thanks to the advice and emails of caring Lymies about how to do this!
I don't have the new protocol's prescriptions yet. Money and time, you know. I'm continuing on some of the meds I still have from the previous protocol, plus the supplements, of course: Cat's Claw, Grapefruit seed extract, Vit C from rosehips, Vit. B, Auum oil, Oregano oil, Evening Primrose Oil, Resveratrol, Olive Leaf - er, there are more, I'm sure. [Blog post about the previous protocol.]
For the most part, I'm feeling good, other than the exhaustion and lack of energy. All the drama and damage are going on inside the body and I only notice at the fit of my jeans how the state of things might be, but nobody else might even notice.
But, enough of that!
Lots of exciting things happening on the Lyme front, which is much more fun to talk about.
Many of you know that May is Lyme Awareness Month, and this year I've tried to get proclamations to that effect from several cities and towns. Trying to keep the momentum going for next year!
Reporting back on events:
- After the meeting with David Tilson, MP, there is now a petition in his office to ask for a National Lyme Strategy. He has a picture that will go in his regular newsletter and he promised to read and report on signatures collected in the House.
- Sylvia Jones, MPP, has written a letter to Deb Matthews, Ontario's Health Minister, to ask what is being done for Lyme disease patients.
- Following up after the delegation to the Region, I've sent a piece to be read on November 19 in Ottawa. Waiting for feedback to work on the wording, etc.
- National Lyme & Associated Diseases Society of Canada was created as an umbrella to have a combination of the various efforts all over Canada. A domain name was registered, but there is no website up yet. This will be a charitable organization.BREAKING NEWSThe big news is the momentum behind a Worldwide effort to bring Lyme disease awareness in May 2013! I've started a page on Facebook to gather some helpers to the effort in Canada.
Front page of the Facebook pageCurrently, there is just a Facebook page. The graphic with the tick was designed by my friend Fiona (her Fiinix website). I think you should be able to view the page even without being a member of Facebook. Admins will be added as towns and cities in Canada join in to plan for May 2013! Also take a look at the original page where the idea started: SwedenSo far, I think there are 16 countries behind the idea: Poland, France, Ireland, Australia and more that I can't remember right now. They all have Facebook pages, though, and are linked on the Sweden page.I'm in discussion with the city of Brampton to talk about a Lyme Awareness event in May 2013, and have talked to a Chamber of Commerce representative today. All sorts of other ideas going on, but I'm sure I've bored you enough by now --- if you're even still reading! Oh yes, if all goes well, there might be really exciting big news tomorrow, depending on when the reply comes through.Future dates already booked:
- Nov 19 and 20 - Information table at the Annual Ontario Federation of Agriculture (OFA) Convention
- Nov. 20 - I'll talk to a Trefoil Guild
- Date to be announced - garden club
- Date to be announced - Rotary club